2012年6月3日星期日

10-year-old boy's weight only 16 kilogram Yises suffer from in the world rare disease

10-year-old Yue sun the Chi weight of boy square only has 16 kilograms, the height doesn't arrive one meter, a year ago listens to the dint, sight and speech start appearing an abnormality, not only the eyelids starts next hang, also confirmed a kind of kidney disease and virus encephalitis that is called "Fan can Ni comprehensive disease".More serious BE, these symptom and paroxysm are taken bad reason up to now still can not accurate diagnosis.Does the of so many problems have a connection?Medium south the Xiang hospital expert of Ya Er of university doubt he may be suffer from very rare"congenital line grain the body brain muscle disease", this disease has something to do with heredity's metabolizing a factor, if confirm, basically be judged death penalty to the kid.30 again hospitalize in the evening big year of 30 many at 9:00 p.m., be other people to all sink to immerse in the peaceful atmosphere China Times of bringing in the new year New Year's Day, the Yue sun county Mao big pond village in the town square a thin good but is another a square prospects.The 10-year-old son square Chi suddenly has high fever and receives a quilt not to eat not to drink to still yell to shout loudly on the bed, "might it not be is again an epilepsy to go into action?"Father square thin conscience inside a hasty, hurriedly call wife, in Lunar New Year's Eve start to embrace a son urgent stepped on to go toward long the sand Xiang Ya Er hospitals' road.Originally, little square although the Chi was 10 years old, hadn't gone to school till now, the village neighborhood all up and down knows he is one"epilepsy disease" kid, may be taken bad at any time,cheap sun glasses the school keeps at a respectful distance to him."He 1 first anniversary top have to epilepsy, have been depending medicine to maintain.10 in the last yearses we didn't know how much time hospital, stayed for 10-20 days each time, only having last year(2009) the condition is better, didn't go to hospital for basic years, but still just 30 go to hospital in the evening."The Chi mother Li Yu Ping of square says.For cure illness for kid to open to lend usury in order to see a doctor for son, square's house has already owed the debt of more than 10000 dollarses 10."This outbreak, we is borrow the usury of 10,000 dollars just rich."Originally have already carried out hospital discharge this morning, also bought homing ticket, hear that the reporter wants, square's house especially the idea want to back a ticket first and slightly and late walk again."Can they backed a ticket for us, backed us 45 dollars."Make reference to here, Li Yu Ping inhibits not and lives to bear with already a long time any further of injustice, the eye brims over with tears.Li Yu Ping tells a reporter, second half husband Nian depends to beat some odd jabses for the side of The Dongting Lake some firewood factory annually, besides which, , all of the rest depend a few farm lands in the home for living."Annually income about 10,000 dollars, but all basically use to repay loan."Li Yu Ping sobs to say.May suffer from the supervisor's doctor of the Chi of square from rare disease in world and Xiang stars piece associate professor from pediatrics in Ya Er hospital introduction, square Chi since 06 years, have already come to many times the hospital."06 in the last yearses of time, discover that the his height, weight basically stops developing, the hospital did a kidney for him to wear a sting and proved that he gets a chronic kidney is burning, finally confirm for'Fan can the Ni synthesize a disease'.When"stars piece introduces, " one year ago again came to hospital, square Chi double the eye eyelids started next hang, started doubting to is an advanced case muscle to have no dint."This Chinese New Year period arrives at Xiang Ya Er hospitals again, the square Chi did waist Zhui to wear a sting again, discovered that the brain accumulates liquid egg white higher, and present a thin yellow, again after electroencephalogram diagnosis, confirm he again suffer from virus encephalitis."Expert in the hospital hopes to find out an accurate cause of disease after many discussions and establish all of his symptoms and diseases, but haven't found out so far.But, we doubt after checking a great deal of cultural heritage, he may be suffer from 1 kind be called'congenital line grain the body brain muscle disease', this kind of disease is all very rare in the whole world."Stars piece introduces, " square the condition of the Chi is very complicated, I so many in the last yearses have never met."Confirm will have no medicine behind can save whether get this should rare disease, stars piece means to need to do a kind of experiment that is called "the muscle lives check".But owing to the medical condition is limited, suggest that to Peking the some hospital carries on and continue to cure.She says:"Jot down according to the cultural heritage, the whole world didn't cure for good currently of way,Mens Mont blanc Sunglasses kid whole body the muscle may slowly atrophy, kidney organ etc. will crock up gradually ……" the square thin good helpless earth's surface of kid father shows, as long as has a front line hope, can'ts give up a treatment."Just we went to Peking, not only want to own money again, the farm land of home also want Huang."


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